Hello world!
Posted by cdlsohio on October 14, 2006
I guess the first thing I should do is introduce myself. I am Vicki. Mom to Marci. I live in a world of uncertainty like the majority of you. I drink too much coffee, get too little sleep, hit the floor running in the morning and gripe about my poor aching feet all of the time.
My uncertain world is filled with obsessive compulsive behavior, medical fragility, and a lot of love, laughter and tears in the form of my daughter Marci who has Cornelia de Lange Syndrome. You will get to know Marci as I share from time to time, but if you want to catch up and read about her early years you can visit her web site Growing Up With Marci and CdLS.
I will tell you about the rest of my family another time. We have plenty of time to get to know each other. I just wanted to establish a resting place for my thoughts. I believe I have found the perfect place. Not quite the shady tree on a hot day, but it is a nice place to sip my coffe and put my thoughts to bed.
Sandi said
Great start Vicki!! I look forward to reading more
cdlsohio said
Thanks Sandi. Glad you stopped in
Marlene Copeland said
Ahhh….Vicki, I could listen to you all day…saying just what I’m thinking…sigh…….
Nani said
Hello Marci & mom,
I was googling through and stopped by your page. I have a patient with CdLS and I tell you, she is as wonderful as you sound. She is 15 years old and still has a full life ahead of her and if you don’t mind, I’d like to tell her about your website. Well, hope to continue reading about you!!