Echoes of Marci

CdLS – A below zero struggle to keep the socks on

Little Visitors

Posted by cdlsohio on July 25, 2007

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Marci’s Daddy thought he had his bird feeder safe from critters by putting it on a metal TV tower. He was surprised to look out and see raccoons making themselves right at home. They have visited many times this summer. Marci could care less, but my husband and I sure have gotten some amusement out of them. They think our deck is their playground. Here is a couple snapshots I thought I would share.

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Posted in Uncategorized | 7 Comments »

Marci helps in the kitchen

Posted by cdlsohio on November 14, 2006

Oh the wonderful smell of brownies! That is what I came home from work to the other day. Marci and her care provider decided to make brownies and as you can see by the photos Marci was a big help in the kitchen. My camera was left on the kitchen counter by me after using it on a project for Christmas and Marci’s care provider just could not resist the opportunity to snap the shots. She wanted me to see what I missed while at work. The brownies were a delightful surprise but the photos are priceless. It seems that little Miss Marci has a good time even when I am at work! I guess I should mention that the brownies were wonderful!

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Posted in CdLS | 7 Comments »

Meet Marci

Posted by cdlsohio on October 16, 2006

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Say Hello to Marci. She is 27 years old and has Cornelia de Lange Syndrome. She is as beautiful inside as she is out. That grin you see is a welcome site in our household. It always brings a smile to my face for sure. Marci stands a whopping 47 inches tall and weighs 58 pounds. She is a walking oxymoron. Fragile with the strength of an elephant she runs our household with the blind determination of an obsessive compulsive person who has the vision of a perfect world and is bound to make it happen. When she demands, we comply. It is just easier. We get the nod of approval and a grin is our reward. When she smiles our world is perfect. If only every day could be a perfect day.

Posted in CdLS | 2 Comments »

ABOUT ME – Blog Challenge #1

Posted by cdlsohio on October 15, 2006

Name of Child with CdLS whom you participate in this list on behalf: Marci

Books currently on my nightstand: Face by Dean Koontz, Mac OSX Tiger Addition

Favorite TV show(s): Criminal Minds, House, Monk and Charmed

What’s the car radio tuned to? Soft Rock

Last movie seen in a theater: The Wicker Man (I hated it)

Dream vacation: A month of sleeping in and eating what I want without consequences

Grew up in…. Rural Ohio

First job: Picking strawberries on a local farm for 10 cents a quart

Favorite Quote: There are no mistakes in Life, just lessons

One interesting thing about me you might not know: I live in such a remote area in Ohio that I have to use dial-up for my internet connection because nothing else is offered in my area

Posted in CdLS | 4 Comments »

Hello world!

Posted by cdlsohio on October 14, 2006

I guess the first thing I should do is introduce myself. I am Vicki. Mom to Marci. I live in a world of uncertainty like the majority of you. I drink too much coffee, get too little sleep, hit the floor running in the morning and gripe about my poor aching feet all of the time.

My uncertain world is filled with obsessive compulsive behavior, medical fragility, and a lot of love, laughter and tears in the form of my daughter Marci who has Cornelia de Lange Syndrome. You will get to know Marci as I share from time to time, but if you want to catch up and read about her early years you can visit her web site Growing Up With Marci and CdLS.

I will tell you about the rest of my family another time. We have plenty of time to get to know each other. I just wanted to establish a resting place for my thoughts. I believe I have found the perfect place. Not quite the shady tree on a hot day, but it is a nice place to sip my coffe and put my thoughts to bed.

Posted in CdLS | 4 Comments »